Monday, April 13, 2015

Jog For Josiah




As many of you know, our son, Josiah, was recently diagnosed with Duchenne Muscular Dystrophy. This diagnosis has brought with it all of the emotions you would imagine, and we are continually grateful for all of the love and support we receive from all of you. 

Duchenne is the most common fatal genetic disorder among children. To date, there is no cure or treatment to stop the progression of Duchenne. Those with Duchenne are truly in a race against time as their muscles deteriorate further each day. It is almost impossible to imagine that in just a few years, Josiah will need a wheelchair to get around, and even more impossible to imagine the stages past that. Most of the time, I push away those thoughts because they are just too painful. Already we see the changes (weight gain) brough on by prednisone, the only medical option for Duchenne - it's only purpose to try and slow the progression. 


On Friday, April 24th, his school, The Piedmont School in High Point, NC, will be hosting a run in his honor as part of their field day.  Our family will be participating in the Jog for Josiah which will include running several laps around his school for approximately an hour. The students are raising support on a per lap basis, and if you wouild like to partner with us, any financial donation to help Parent Project MD lead the fight to end Duchenne would be appreciated. Click on the link below and on the site, you will see a "Donate" button.


If you prefer, you may also mail a check, made payable to Parent Project Muscular Dystrophy, to:
Parent Project Muscular Dystrophy
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601

(Please note that the check is in honor of Josiah Deese/Jog For Josiah)

All funds raised will benefit Parent Project Muscular Dystrophy and go directly toward researching a cure. Your contribution is 100% tax deductible.

Thank you for your support of Jog for Josiah to benefit Run For Our Sons and Parent Project Muscular Dystrophy. 


Bennett and Kara Deese and family




No comments: