Wednesday, August 19, 2015

Duke Visit

We went to Duke this week for a check in visit. No changes to medications, therapies, etc at this point. They did an xray of his back to keep track of his spine and watch for scoliosis. Dr Smith did add a few new appointments for Josiah. He will be seeing an orthopedist and an endocrinologist in the coming months. These are standard proceedure for Duchenne patients. Also, we are looking into setting up the screening appointments to see if Josiah will qualify for a current drug trial study at Duke.


Our summer has been full of our favorite things: the pool, the beach, Texas, Legos, cousins, friends