Spring Days

Spring is finally here and it is glorious.  Ball games and green grass and pollen...that last one isn't so glorious ;-)

We have the Jog for Josiah today. Already over $7,000 has been donated for Parent Project Muscular Dystrophy thanks to our wonderful friends, family, colleagues, etc. Everyone has been so generous! The weather is perfect, and we look forward to today's event!

We have been working on adjusting to the night orthotics. One foot seems to bother him more than the other one, but we have a plan to try and locate the issue and correct it as best we can. :) 

Josiah has started Aqua therapy once a week, and he really enjoys it.  He doesn't love the stretching, but he loves being in the water. His therapist is so sweet and works with him amazingly well. 

Part of my reason for blogging, and blogging with a fair amount of detail, is to remember - so that I don't forget all the "little" things along the way. Already some of the timeline from last fall isn't as clear in my memory, but I know I have it written down, and God is faithful. He continues to meet us at each step along the way. 

Orthotics

Last week Josiah and I went to Duke to pick up his orthotics. He will wear these at night. The purpose is to keep the heel cord stretched and hopefully, help Josiah be mobile a while longer. Our PT at Duke is so sweet. She went over how to put the braces on, and then we talked about wheelchairs. When we walk for longer distances, Josiah needs a stroller, but he has outgrown most of your standard strollers. The options from there are a push chair (special needs stroller) or a wheelchair. The PT's opinion was that overall, a lightweight, manual wheelchair would be the best option for Josiah at this point. Sometimes he asks to take his stroller to school, and more recently he asked about getting a rolling walker to use at school so that people wouldn't bump into him. More about wheelchairs in another post.

So Wednesday night we put on the braces, and Josiah went to sleep no problem. At midnight he woke up sobbing, saying they hurt. I took them off, and he went right back to sleep. Apparently that was the straw that broke the proverbial camel's back. I cried longer and harder than I have cried since that week back in August . It was a reminder of the difficulty he, and by proxy, the rest of us will be going through. A reminder that "normal" has gone by the wayside. That my sweet boy will have to endure through this trial. That we can do nothing to change that.